Some guy’s name – One reason for the Down syndrome misconception.

Down Syndrome has changed my life in the most amazing ways possible.  I look at my son and I think “there is nothing more perfect on this planet.”  However, there is one thing that sucks about it. Before you get mad at me for saying that, just keep reading. John Langdon Down.  That’s the guy […]

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My son is a boy with Down syndrome, and your expectations are not his reality.

Two days ago, my husband, his parents, brother, Nicholas and I went to the mall to do a little shopping for our vacation.  Whenever we go shopping, we always joke that my husband is not allowed to talk to anyone because he will make best friends with them and we will be standing around for […]

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The ripple effect.

I did it.  I did the wrong thing.  I limited my own son. I was watching him do physical therapy this week, and the therapist held a toy that looked like it was miles away from him, and expected him to reach for it.  She might as well have asked him to reach up and […]

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I have Down syndrome, too.

When I returned to my job as a second grade teacher, I was not fully prepared to discuss Nicholas’s diagnosis yet.  I was so afraid that if someone brought it up, I would break down crying.  What would the kids think of their long-absent teacher then? It wasn’t only that.  I had gone into labor […]

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The hospital stay.

No, I am not talking about the original hospital stay.  I am talking about the one from last night.  The one where I had to terrorize a security guard to get access to the children’s ER. Okay, maybe I didn’t terrorize them, but I was scary enough to make them think that they would rather […]

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“Hi, this is Mary, Nicholas’s mom..”

That’s a message that I was leaving Nicholas’s babysitter one afternoon. As those words were coming out of my  mouth, I remember thinking “what did I just say?” For some reason, this message that I left was when it hit me that I was someone’s mom.  It wasn’t in the hospital after giving birth, it […]

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