Our weekend getaway… to the children’s hospital…

What a weekend plan we had!!  We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out... Continue Reading →

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Aren’t you Afraid?

For months I have had so much guilt about not posting to the blog.  But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it... I am pregnant again!     This pregnancy... Continue Reading →

Never Stop Advocating

Hey moms, ever find yourself crying in a chair at a special needs advocacy center? Yeah me either... Just kidding.  Did that today. This advocating business is hard. So far, there has been two instances during Nicholas' lifetime where I have taken advice from trusted professionals that was incorrect.  That's twice too many.  I am... Continue Reading →

The ripple effect.

I did it.  I did the wrong thing.  I limited my own son. I was watching him do physical therapy this week, and the therapist held a toy that looked like it was miles away from him, and expected him to reach for it.  She might as well have asked him to reach up and... Continue Reading →

I have Down syndrome, too.

When I returned to my job as a second grade teacher, I was not fully prepared to discuss Nicholas's diagnosis yet.  I was so afraid that if someone brought it up, I would break down crying.  What would the kids think of their long-absent teacher then? It wasn't only that.  I had gone into labor... Continue Reading →

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