Spreading Down Syndrome awareness and acceptance by sharing our true stories
Nicholas’s sleep study was last weekend. It was a comfortable and restful evening away for the both of us. Just kidding… I’m so exhausted from it that I almost decided to forego the blog post about it, but there were so many things that I would’ve done differently and I wouldn’t be doing my job […]
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I will never forget this moment. I was left alone with both kids for the first time ever, and Marley needed a diaper change and a feeding right away. Nicholas, at that same moment, put his arms up for me to pick me up. To me, when a baby does that, it is the highest […]
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Just so you know, I definitely did NOT cry and eat a half-pint of ice cream yesterday during the kid’s nap. Ok, yes I did. I have been running this blog since 2018, and in that time period have recounted many mommy crying episodes to you. Yesterday’s came out of nowhere. I got a call […]
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I am sure you’ve all experienced it. Maybe there were people you met in college that you spent every day with, and now never speak to. Or the person who you were inseparable with in high school is now someone you couldn’t pick out in a lineup. Maybe your whole facebook newsfeed is filled with […]
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Hey everyone. If any of my readers have been pregnant before, you know that pregnancy tends to make you.. well.. a little dumb. So, I apologize for my long gaps between posts during this pregnancy. I am too busy trying to remember why I walked into the next room and figuring out how I am […]
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What a weekend plan we had!! We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out […]
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For months I have had so much guilt about not posting to the blog. But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it… I am pregnant again! This pregnancy […]
Read MoreHey moms, ever find yourself crying in a chair at a special needs advocacy center? Yeah me either… Just kidding. Did that today. This advocating business is hard. So far, there has been two instances during Nicholas’ lifetime where I have taken advice from trusted professionals that was incorrect. That’s twice too many. I am […]
Read MoreAlways get a second opinion, and then a third, and maybe a fourth. As a lifelong rule-follower, it was easy for me to listen to every little thing the doctors told me. They’re doctors, so they know. I barely knew anything about Down syndrome at the time of my son’s diagnosis. So, how could I […]
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