It’s our three-year anniversary!
We have been MIA from our beloved Down syndrome community for six months, and I am finally ready to explain why!
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Our weekend getaway… to the children’s hospital…
What a weekend plan we had!! We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out […]
Read MoreI’ll always remember us this way.
Last night, after Nick and I hung out with some friends from his new job, we went to pick up Nicholas from my in-laws. It was already pretty late, and he probably should have been in bed already, but we needed him to be home for today. It was a big day for us. When […]
Read MoreAren’t you Afraid?
For months I have had so much guilt about not posting to the blog. But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it… I am pregnant again! This pregnancy […]
Read MoreA letter to our ‘someday’ baby. Good news! Your brother has Down Syndrome!
No, I am not pregnant. Don’t get too excited. But I did meet two newborns this week. Two good friends of mine had babies in the same week, and I was lucky enough to be able to meet their little miracles. The visits made me reminisce about the days when Nicholas was a newborn. I […]
Read MoreI was mourning the wrong loss, and I didn’t even know it.
The nurses took Nicholas away to get treatments for jaundice. They left us alone in the room, and suggested we get some sleep. It was only hours after we were told about their suspicions of Down syndrome. When we were initially told about it, I remained stone cold, with an “okay, that’s fine” demeanor. I couldn’t […]
Read MoreThe evening black-outs.
That statement used to mean something completely different a couple of years ago. Now, it’s the phrase I use to describe the evenings after I get home from school. I leave school as soon as the busses do and drive immediately to the sitter’s house. Do a little small talk, and leave. We get home […]
Read MoreSeeing other extraordinary people.
This is when I don’t know how to be an advocate… Bear with me, friends. I have only been a part of this community of moms for 8 months, and I am still learning the ropes. Last Sunday, my friend and I decided to venture to the baby clothes store, which is about an hour away […]
Read MoreThe hospital stay.
No, I am not talking about the original hospital stay. I am talking about the one from last night. The one where I had to terrorize a security guard to get access to the children’s ER. Okay, maybe I didn’t terrorize them, but I was scary enough to make them think that they would rather […]
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