Spreading Down Syndrome awareness and acceptance by sharing our true stories
Happy Book Teaser Tuesday! Here’s the cover of my upcoming book, A Truly Limitless Life! The very talented Mike Regina, designed the cover. Amazing local photographer Elizabeth Canfield took the cover photo and some of the interior photos. What kind of book is it? A Truly Limitless Life is my story as a new mother […]
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Nicholas’s sleep study was last weekend. It was a comfortable and restful evening away for the both of us. Just kidding… I’m so exhausted from it that I almost decided to forego the blog post about it, but there were so many things that I would’ve done differently and I wouldn’t be doing my job […]
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The time has come to get our son with Down syndrome scheduled for a sleep study. Here’s what happened at the consultation.
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We have been MIA from our beloved Down syndrome community for six months, and I am finally ready to explain why!
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What a weekend plan we had!! We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out […]
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Last night, after Nick and I hung out with some friends from his new job, we went to pick up Nicholas from my in-laws. It was already pretty late, and he probably should have been in bed already, but we needed him to be home for today. It was a big day for us. When […]
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For months I have had so much guilt about not posting to the blog. But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it… I am pregnant again! This pregnancy […]
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No, I am not pregnant. Don’t get too excited. But I did meet two newborns this week. Two good friends of mine had babies in the same week, and I was lucky enough to be able to meet their little miracles. The visits made me reminisce about the days when Nicholas was a newborn. I […]
Read MoreThe nurses took Nicholas away to get treatments for jaundice. They left us alone in the room, and suggested we get some sleep. It was only hours after we were told about their suspicions of Down syndrome. When we were initially told about it, I remained stone cold, with an “okay, that’s fine” demeanor. I couldn’t […]
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