Our weekend getaway… to the children’s hospital…

What a weekend plan we had!!  We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out […]

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I’ll always remember us this way.

Last night, after Nick and I hung out with some friends from his new job, we went to pick up Nicholas from my in-laws.  It was already pretty late, and he probably should have been in bed already, but we needed him to be home for today.  It was a big day for us. When […]

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Aren’t you Afraid?

For months I have had so much guilt about not posting to the blog.  But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it… I am pregnant again!     This pregnancy […]

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I was mourning the wrong loss, and I didn’t even know it.

The nurses took Nicholas away to get treatments for jaundice.  They left us alone in the room, and suggested we get some sleep. It was only hours after we were told about their suspicions of Down syndrome. When we were initially told about it, I remained stone cold, with an “okay, that’s fine” demeanor.  I couldn’t […]

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The evening black-outs.

That statement used to mean something completely different a couple of years ago. Now, it’s the phrase I use to describe the evenings after I get home from school. I leave school as soon as the busses do and drive immediately to the sitter’s house. Do a little small talk, and leave. We get home […]

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Seeing other extraordinary people.

This is when I don’t know how to be an advocate… Bear with me, friends.  I have only been a part of this community of moms for 8 months, and I am still learning the ropes. Last Sunday, my friend and I decided to venture to the baby clothes store, which is about an hour away […]

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The hospital stay.

No, I am not talking about the original hospital stay.  I am talking about the one from last night.  The one where I had to terrorize a security guard to get access to the children’s ER. Okay, maybe I didn’t terrorize them, but I was scary enough to make them think that they would rather […]

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What does a Down Syndrome mom look like?

I want you all to know that when I talk about the difficult times after I gave birth to Nicholas, it in no way means that I am upset about his having Down Syndrome. There are two reasons that I talk about it so often. The first is because when I was going through it, […]

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