Reminders

Hey everyone. If any of my readers have been pregnant before, you know that pregnancy tends to make you.. well.. a little dumb.  So, I apologize for my long gaps between posts during this pregnancy.  I am too busy trying to remember why I walked into the next room and figuring out how I am […]

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Our weekend getaway… to the children’s hospital…

What a weekend plan we had!!  We were going to go to Hudson Falls, spend time with family, maybe do some shopping, and go to an aquarium! That is not the weekend we had. As many of you fellow Down Syndrome parents know, there are many possible medical risks that we have to look out […]

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Aren’t you Afraid?

For months I have had so much guilt about not posting to the blog.  But, I have a good excuse.. I think. I have been too busy eating all of the oranges I can handle. Puking my guts out, and falling asleep sitting up. You guessed it… I am pregnant again!     This pregnancy […]

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What do I get out of this?

I usually jot down the important conversations that I have with my students.  Anything meaningful, or that I can’t believe they would say, I like to write down in my planner. Earlier this month, my lovely dog ripped up my beloved planner in an attempt to get to a granola bar that was inside my […]

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Never Stop Advocating

Hey moms, ever find yourself crying in a chair at a special needs advocacy center? Yeah me either… Just kidding.  Did that today. This advocating business is hard. So far, there has been two instances during Nicholas’ lifetime where I have taken advice from trusted professionals that was incorrect.  That’s twice too many.  I am […]

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A little bit about Early Intervention Services

Always get a second opinion, and then a third, and maybe a fourth. As a lifelong rule-follower, it was easy for me to listen to every little thing the doctors told me.  They’re doctors, so they know.  I barely knew anything about Down syndrome at the time of my son’s diagnosis.  So, how could I […]

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Some guy’s name – One reason for the Down syndrome misconception.

Down Syndrome has changed my life in the most amazing ways possible.  I look at my son and I think “there is nothing more perfect on this planet.”  However, there is one thing that sucks about it. Before you get mad at me for saying that, just keep reading. John Langdon Down.  That’s the guy […]

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I was mourning the wrong loss, and I didn’t even know it.

The nurses took Nicholas away to get treatments for jaundice.  They left us alone in the room, and suggested we get some sleep. It was only hours after we were told about their suspicions of Down syndrome. When we were initially told about it, I remained stone cold, with an “okay, that’s fine” demeanor.  I couldn’t […]

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