Sleep Study – The consultation
The time has come to get our son with Down syndrome scheduled for a sleep study. Here’s what happened at the consultation.
Read MoreCategory: What You Should Know About Down Syndrome
World Down Syndrome Day 2021 – A quiet year for us
This is our first and only year laying low on World Down Syndrome Day. Thankfully, someone reminded me that our efforts will be worth it.
Read MoreReceptive Language: Why I talk out loud all day long.
When I was working on my book tonight, I was working on a section about receptive language and realized that I have never talked about this on the blog yet. This is such an important topic, and the sooner you can work on this, the better! So, here is the little excerpt that I added […]
Read MoreWhere have we been?
Honesty Time. The initial quarantine really put us into a funk as far as having a story to tell. Now, it has been months since my last post, and every time I sat down to try and blog, I could only come up with the same few sentences. I am happy to have more time […]
Read MoreSpecial boys need special toys?
No, they don’t. Special boys need parents who are willing to do the work. What a lovely Christmas we had this year. It was our first Christmas with our baby girl, our kids were spoiled rotten by our family members, and I ate about 35 Italian cookies. Alright, enough about me. I want to talk […]
Read MoreNever Stop Advocating
Hey moms, ever find yourself crying in a chair at a special needs advocacy center? Yeah me either… Just kidding. Did that today. This advocating business is hard. So far, there has been two instances during Nicholas’ lifetime where I have taken advice from trusted professionals that was incorrect. That’s twice too many. I am […]
Read MoreA letter to our ‘someday’ baby. Good news! Your brother has Down Syndrome!
No, I am not pregnant. Don’t get too excited. But I did meet two newborns this week. Two good friends of mine had babies in the same week, and I was lucky enough to be able to meet their little miracles. The visits made me reminisce about the days when Nicholas was a newborn. I […]
Read MoreSome guy’s name – One reason for the Down syndrome misconception.
Down Syndrome has changed my life in the most amazing ways possible. I look at my son and I think “there is nothing more perfect on this planet.” However, there is one thing that sucks about it. Before you get mad at me for saying that, just keep reading. John Langdon Down. That’s the guy […]
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