Spreading Down Syndrome awareness and acceptance by sharing our true stories
An awesome reader and I got into a long discussion about setting up a new baby’s room. She found out about her child’s diagnosis recently, and she has to wait a few more months to meet the little angel! There is so much to think about when setting up the little nursery. The “nesting” instinct […]
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I will never forget this moment. I was left alone with both kids for the first time ever, and Marley needed a diaper change and a feeding right away. Nicholas, at that same moment, put his arms up for me to pick me up. To me, when a baby does that, it is the highest […]
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Just so you know, I definitely did NOT cry and eat a half-pint of ice cream yesterday during the kid’s nap. Ok, yes I did. I have been running this blog since 2018, and in that time period have recounted many mommy crying episodes to you. Yesterday’s came out of nowhere. I got a call […]
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With various phases of reopening happening across the state, many Early Intervention service providers have begun moving forward with plans for in-person therapies. With the initial closing down of EI back in March, there was a long gap in therapies, then the option of teletherapy, which was out of reach for so many families, and […]
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Nicholas has a September birthday and Down Syndrome. To me, that equals a kid going to Pre-K seemingly very young. So, I was already nervous about this transition. You can imagine that the nerves were only heightened when I learned that all of his evaulations would be happening via teletherapy. I am not sure about […]
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Honesty Time. The initial quarantine really put us into a funk as far as having a story to tell. Now, it has been months since my last post, and every time I sat down to try and blog, I could only come up with the same few sentences. I am happy to have more time […]
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Across the board in my area, early intervention has been cancelled. If you are a special needs momma like me, you probably immediately worried about your kiddo’s development. Luckily, I am off work and can prioritize working with Nicholas. However, that is not the case for everyone, especially if you are also trying to homeschool […]
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Dear You, This week, Nicholas’ ambassador announcement was sent to a couple of media outlets. Within an hour, the story was everywhere. As the week progressed, more coverage led to more articles, two news segments, a front page of our local paper, and over a thousand shares on facebook. Although I have been so overwhelmed […]
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If you are a parent, then you probably know the feeling of looking down at your child and being in complete awe at whatever it is they are doing. If you’re a softy like me, they could just be doing something simple, like putting a toy away or asking for a snack. I see that […]
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